Wednesday, September 21, 2016

Results - Sort of

We finally got the news today.

The doctor started off by telling mom that she is a highly unusual case. In my experience, that has never been a good sign, as it seems we are always deemed "highly unusual cases" around these parts.
The good news from the biopsy is that it is not cancer! Oh, sweet relief!
But, the lesions on her liver are not exactly typical, either. It seems that they scar tissue from what they think must be infection. What infection? Not sure. Could be the Lyme disease and secondary bacterial infection she had when the big boys were not yet one? She was very sick then. Other than that, she has been fairly healthy, so nothing else comes to mind except the sjogren's that she has.
They don't know much more than that at this point. They've sent the biopsy out to LA for further testing.
Such a relief! But still no definitive answers. She is still struggling with the ulcers (the wait for results has not been helpful with that at all either). I will be happier when we have more concrete answers, that's for sure.

Saturday, September 10, 2016

Biopsy Done

Thursday she had the liver biopsy. They took five different samples, which we saw in a small little jar before it was packed to send to the lab, and I have to say that it is quite odd to see how small the samples from these kids of things really are. I suppose one doesn't think about those things until they are confronted with them head on. Anyway, she thankfully had no complications and seems to be okay from the procedure itself. They told us 3-5 days before we'll get the results.

She is very set on the idea that these results will also be negative. I want to be as confident as her, although I struggle more than she is in that area.

Back to waiting. I'd appreciate any good thoughts you could send her way.
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