The sample was sent to LA and then on to Stanford. Results came today.
Ho.dgk.ins Lym.ph.oma. No information was provided outside of that. She has an appointment with an oncologist on the 12th, which is I suppose when more answers will come.
I can't even begin to dissect the emotions I'm feeling, particularly the whole WTF??? about being told specifically that it wasn't cancer, only some sort of scar tissue, to now being told that it is. I also have to admit that I am not confident about the prospect of her getting treatment from a group that so royally fucked up at every turn. She is angry, but her frustration seems so quiet. She is not me, and her temperament is most definitely different than mine. While I tend to fight first and ask questions later, she is one to sit and reflect. So, while I can urge and try to voice my opinion, ultimately I have to take my place as the passenger, sitting back and letting her take the lead on how this goes. My job is to support her. (Which, in a lot of ways, is so much scarier than taking over control myself.)
I have done a very limited amount of research this evening. Survival and cure rates seem to be very high with this type. I couldn't bring myself to go much deeper than that because I honestly can't wrap my mind around all of this just yet. I need to sit with this for a bit.
How does a person go from being completely healthy to cancer? From a heart scan due to high blood pressure/pulse to lesions? From TWO biopsies with negative results to Ho.dgk.ins Lym.ph.oma? I don't know.
If you're the type who prays, would you say a few extra prayers for my mama? Because she just has to be okay.
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8 comments:
Stacie, I'm so sorry! How cruel to be told it wasn't cancer to face this diagnosis. I am hoping for good news for you guys moving forward.
I am keeping your mum (and you) in my thoughts. I am so sorry that you're going through this. What a mind-fuck to get one diagnosis followed by the other.
Oh I'm so sorry! Prayers and good vibes for your mom...
Praying for your mom.
What the actual f*ck with the doctors/labs?!? I cannot imagine how much of a mind f*ck that had to be! Gahh. Thinking of you.
Oh My God! I am very sorry to learn about this.
I will keep her in my prayers...you can count on that.
Also, life is crazy.
Oh no I'm so sorry! I would definitely work on getting a second opinion- at least in terms of treatment. I would also ask why they ruled out cancer the first time- what did they miss?
It's been 12 years since my mother, who had NO symptoms whatsoever was diagnosed with cancer, and, ironically 10 years today since she died. She went in for a routine physical because we were moving and she was changing insurance. And in the blink of an eye she had cancer. So I don't know how you get there and I've had a lot of time to ruminate.
Well shit. I'm just catching up with this news. I'm so sorry and will definitely add your mom and you to my prayers.
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