Friday, April 30, 2010

NIAW - Project What If?

As many of you know, several weeks ago Mel joined with Resolve and launched a new undertaking called Project What If. The first part of the project simply asked us to post our biggest “what if” in regards to infertility. Over 400 participants submitted some of their deepest fears about the effects of infertility on their lives. I have to say that the list is powerful, so much so that I often felt my head nod and the tears flowed while I read them.

One of my own what ifs is part of that incredible list. It pains me to admit that this thought plagues my heart and mind on a regular basis, and frankly I am not even sure why this what if was the one that my fingers typed that evening (because oh how I try to avoid it), but it is telling nonetheless.


What if I can never get over the feeling that my body has failed me...has failed us?


I suppose this question speaks volumes about what our infertility journey has done to me as a person. Once upon a time I was a confident, capable woman. If I wanted something, I knew that hard work and dedication would make that want attainable. I was optimistic and generally carefree. I was outgoing and took risks because I expected that things would work. It always had before.

But now, those parts of me are gone hiding deep inside. The confidence, the optimism, the expectation that all would be well are no longer the norm. Our life after that day I threw out my birth control pills in November, 2005, has taken its toll on me.

You might not even really understand at first why someone with amazing two year old twin boys (who continuously light up my waking moments with incredible amounts of joy I might add) would even consider her body a failure, but I do. Sometimes, the emotions and guilt I feel about this issue are so intense it can bring me to tears.


  • My body was the one that brought infertility to my family's doorstep.

  • My body was the womb o' death for two little lives and 10 embryos before I was diagnosed with high FSH at 34, MTHFR and a Protein S deficiency. Sadly, it continued to be the womb o' death for another little life after diagnosis.

  • Once I got pregnant, it was my body which had an incompetent cervix that required an emergency cerclage at 20 weeks and strict bed rest.

  • It was my body that PPROMed at 26 weeks and delivered my boys at 28 weeks and 3 days which created countless complications and pain for them (including a total of 14 surgeries between the two of them), some of which are likely to remain for life.

Intellectually I KNOW that I am not the cause of all that has happened. I KNOW I am not at "fault." Sometimes, though, the heart is a little slow to understand such logic. The heart just knows what it feels. In all of these cases, it feels like I should have been able to do something different, something that would have made things so much easier for all of us. And in each instance, my body failed -- I failed.

It is hard to be confident, when you feel like you failed so miserably at something it seems anyone can do without a second thought.

It is hard to be optimistic when it seems the universe takes every chance it gets to make things challenging and painful for our family.

It is hard not to expect the worst sometimes.

A part of me wonders if all of these feelings are not a large part of my need to have another baby. I wonder what if I get pregnant again and have a healthy, trouble free pregnancy? What would it be like to forgive my body--myself--for the previous failures and pain?

It would be so healing to be able to have another child and expand our family like I've always dreamed we would.

Because you know...it is so hard not to have hope that it won't always be this difficult. It is hard to not have hope that next time it will be better. What if it is?

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I wanted to add that on this day three years ago, I had six embryos transferred. It was my third IVF after two early miscarriages.







I often wonder which of those little six embryos were the ones that became my miraculous boys.

I came home hopeful and excited. My husband, Is.aac, wrote a message on my belly welcoming our little embabies into the family. (It is our tradition for every transfer.)



I am so grateful for the two little boys who are now sleeping in their beds.


For some reason, I think it is fitting that this monumental event in our lives is tied to the National Infertility Awareness movement that is happening this week. It is my family's way of flipping infertility the bird--and boy does that make me smile. :-)




April 21 - May 1 is National Fertility Awareness Week, a movement to raise awareness about the disease of infertility which affects 7.3 million Americans. For more information about infertility awareness go here or here. To read more about how you can contribute to Project IF visit Mel’s Stirrup Queens.



Wednesday, April 21, 2010

Drama'd Out

We are alive. I am just extremely tired from the fuckedupedness* that is this week. Way to start this year off with a bang. Sigh.

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Ja.son: The Tuesday drama


The surgery went off without any problems. They waited to do anything to him until after they had put him to sleep. I changed him into his hospital gown and gave him a cocktail of ty.lenol and versed about 10 minutes before his scheduled time. They had me suit up in an outfit and let me carry him into the operating room, where I held him while they gassed him to sleep.


Ja.son pre-op, just after he took his little cocktail. He is quite loopy here. (Notice his right eye is turned. They alternate turning in, which meant his surgery was bilateral.) I look like shit here. I had only had an hour and half of sleep because of the mom drama.


His recovery cubicle was the exact same one I had for my surgery. He had the same nurse, too. (She remembered me...or at least my hives. lol. She said she was worried about me. Aw shucks.)



They let me get into the bed with him to hold him. He slept on me like that while the anesthetic was wearing off. Well, he slept when he wasn't screaming or violently thrashing around trying to hurt me. He became pretty violent from the drugs.



Such a sweetie pie in this photo. It was sort of like the calm before the storm. (Is it strange that we took pictures of this?)

They let us leave after about an hour.

Yesterday afternoon with Ja.son was beyond horrible. It didn't matter what we did, it wasn't right. He screamed for hours and was generally inconsolable for the entire day. I am not kidding. I couldn't talk--or be quiet. I couldn't move. I couldn't leave his sight. Awful. It took both of us to hold him down and prevent him from hurting himself at times. (It was scary, too.)

Thankfully, he seems to be in a better mood today. He even did his therapy!

Note to self: Anesthesia and my two year old = a bad combination, that is for sure.

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My mom: the Monday drama

My mom is now able to open her eyes, but she is still so dizzy she can't get herself out of bed without help. They gave her zofran, ativan, and an anti dizziness medication. The meds only have a limited effect on her symptoms so far. The ER doctor diagnosed her with positional vertigo.

It started on Monday at 4:19 pm. She was sitting on the floor with the boys and moved her head just so. She was immediately nauseous and her eyes started to bother her. She crawled to the phone (about 30 feet) and called me at work. What time was I coming home wanted to know. Every one's fine she assured me but she wanted me to come home.

I got there to find her sitting on the floor by the phone holding her head. I asked her what was wrong. She told me she was dizzy and nauseated. She said that one moment she was fine, but the next she was dizzy and couldn't open her eyes.

Needless to say, I freaked the fuck out. Made her smile at me. She did. In my head I was playing all of the scenarios...was it a stroke?...oh, God, don't let it be a stroke...I have to watch her smile again...what if this had happened and I was nowhere near?...what am I going to do with the boys?...

I tried to get her up to my car to take her to the ER. She couldn't do it and sort of collapsed on floor. Then she started vomiting.

Ja.son started crying hysterically. Sh.awn then started crying because Ja.son was crying.

I freaked the fuck out even more and called 911.

Fast forward 10ish hours, after blood work, a CT scan, a MRI, and a lot of waiting later and she was discharged. Got her home at 2:45 am. You know the rest.

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My mom is my childcare. Both Is.aac and I were out on Tuesday. I went to work today while Is.aac stayed home with the boys. Tomorrow we'll switch. I don't know what we'll do on Friday. Sadly, we don't have a plan B as far as childcare goes.

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Wednesday's drama:

My pal, IB, came back today. It is most unpleasant to have to go to the restroom but not be able to leave the room. Most unpleasant. The second that bell would ring would be my cue to RUN to the bathroom. I may have shoved people out of the way in my haste. Maybe. Probably.

I think I am feeling better. Can't be much left in me at this point anyway. (sorry about the tmi)

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More Wednesday drama:

I just found out today that as of September 30th, my district will no longer be using my HMO provider.

I am hyperventilating here.

In our situation, our insurance provider has done everything we've asked it to with relatively zero issues. For all the medical issues we've had over the last few years (NICU, surgeries, etc), we've payed either the $25 copay for dr. visits or $250 co-pay for hospital stays. That is it.

And now?

Now I can either change us to PPO, which I fear would break us financially, or use one of two other insurance providers for HMO. The crappy possibilities are going to keep me up at night, I am sure.

The special open season for those affected ends in two weeks.

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I have hives all over my hands. They itch like crazy. Picture me using an old wire brush to scratch them with...um, yeah. I am afraid to take benadryl because I am not really sure if it will help or just make them worse.

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Oh, and the dentist called to remind me that I had an extraction scheduled for tomorrow. Needless to say, I cancelled. I think I need all the wisdom I can get at this point.

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I am ready for Thursday to be a nice quiet day full of lots of rest. I think I am all drama'd out, thank you very much.

*Sorry about the curse words. I usually don't use them. But lately, they just seem so appropriate.

Tuesday, April 20, 2010

Mom is better than yesterday but still feels crappy. will update later after a long nap. thanks everyone.

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At home now. He didnt enjoy the experience too well. he woke up cranky and pissed at the world for even looking at him. He is my child after all.

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My mom discharged at 2:15am. Back at same hospital with Ja.son at 6:00 am. Tired.

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Monday, April 19, 2010

In ER with my mom. We thought she had a stroke. Think vertigo now. Waiting for CT scan results.

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CT and blood work clear -- thank God.

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