You'll love this one. Surgery 7 today. It seems that the catheter "moved" out of his ventricles. This doesn't happen, in fact none of the nurses we've talked to (and we talked to them all) have ever heard of this happening before. I get that the nurses are not specialists, but they've been around. They know. The neurosurgeon on call last night was surprised. The head of neurosurgery had a totally different demeanor this time, too. He was serious. Asshole did the operation. Any correlation you think?
Head of neurosurgery did this latest surgery. They used an endoscope (again) to make sure placement is correct. Of course, they've used the endoscope at least two other times and we know how that went.
Head looks good so far. Smiling. Eating. Pooping. But I am far from relaxed about this being the fix. I want a CT scan before we leave. The neuro team don't seem to want to do it unless there is an indication that things are amiss. I want it for my sanity. Can't they give me just one day of knowing that the thing works the way it is supposed to?
I smell the brewing of a lawsuit against the asshole. I am not one to go after someone or try to seek revenge over something, but this whole situation just reeks of malpractice. I am having trouble connecting with the patient advocate this time around, so I am not sure what I'll get from her.
Seven. Fucking. Surgeries. Since. March. 18. What. The. Fuck!
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Hugs to Topcat. I am thinking of you and sending loads of love your way.
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1 day ago
4 comments:
LET ME AT THEM!
That's just beyond bullshit, Stacie.
Love to you. xoxo
You def need to speak to patient rep. You need it for your sanity. Get a second or third opinion! Switch hospitals if you have to! If it is malpractice, you need to do something aboutit.
Sending love to shawn.
Insist on a CT scan. Insist on it. Refuse to leave the hospital until they do it.
They are in serious CYA mode. Don't let them get away with it.
I'd definitely talk to a medical lawyer and see what they say. It seems insane that this would happen. Perhaps as well you can request to go to a new hospital? Maybe UCLA? I know they hate when you change and then you have to explain everything to new doctors but honestly if they can't do things right, then it might be worth the hassle.
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