We finally got ahold of THE doctor yesterday. Say Amen for small miracles! Well, she was one of the doctors we were trying to get ahold of. Anyway, I got a good feeling from her. She seems to be pro-baby and not as much "let's do all the procedures we can".
The goal is to try to get the babies in tomorrow for their reservoirs. While the babies are not symptomatic yet, the doctor doesn't want to wait until they are symptomatic to act. (I agree with this.) Apparently, though, the evasive neurosurgeons are putting the boys at the end of their patient list because they don't have symptoms. The catch twenty-two. The doctor we spoke with was trying to work on that problem.
She also said that they would let the babies tell them what to do next. For once, she actually said that we want the bleeds to resolve themselves without further intervention. (the doctors at the other hospital had said that all along) If the babies can't resolve the bleeds, then they would proceed to shunting.
She also said that they don't like to shunt babies this little so after the reservoirs are placed, she would have no problem with them returning to our local hospital. I almost fainted at that! And I could have kissed her.
That has made sense to me all along. If they are only going to observe them and tend to their daily needs, I didn't understand why it had to be there and not at our local hospital. Especially after they place the reservoirs. I was under the impression when they were moved that they would tap their ventricles and then return them to our hospital anyway. Finally someone understands that.
Something to feel positive about, right? I am taking whatever I can get now.
More exciting news is that Sh.awn tried his first bottle today. The nurse said he looked like he was ready to try nippling, so she gave him 5ccs in a bottle. He apparently wasn't ready for all of the hard work and didn't enjoy it. No worries, he'll get more practice! I sooo wish I was there. Hopefully, we'll try it again when I am there.
Weights continue to rise: Sh.awn is 4lbs 5ozs while Ja.son is 4lbs 13ozs.
All in all, today is a good day!
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1 day ago
3 comments:
Wonderful news all around. They're really doing great with their weights!
I hope you're back in your own hospital very soon.
Can I get an amen sister !
FINALLY ! Someone who seems to know what she's talking about. I would have hugged her and then punched her for not talking to you sooner :)
Their weights look great too.
I'm glad today was a good day.
Very glad you are feeling positive and had such a great day!
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