Today just kept getting worse by the hour.
The NICU doctor called the house pretty early today to say that he wanted to have the babies transported to another hospital--an hour and a half away (without traffic). Both babies' head circumferences were growing at a rate faster than what the doctors wanted to see. Both were diagnosed with hydrocephalus, which apparently isn't uncommon in babies with brain bleeds. There are no pediatric neurosurgeons in my county, so we had to go to where one was.
They were taken one at a time via ambulance to the new hospital. Sh.awn went first because he had more swelling than Ja.son. I held him for about forty-five minutes before they loaded him into his little travel incubator and whisked him away.
I wasn't allowed on the ambulance with Sh.awn. I could follow behind them in my car, but Is.aac wasn't home (wouldn't you know it) and I didn't want to leave Ja.son behind.
So I stayed with Ja.son for an hour and a half until Is.aac got there. I kissed Ja.son goodbye and we took off to the new hospital.
Talk about culture shock. I like my "old" NICU so much better. The nurses and doctors all seemed to be efficient and nice, but the place just seems so cold. Plus, we were wanded with a metal detector at the entrance and there was a security guard at the entrance to the NICU wing. Scary.
After what seemed like forever, Ja.son arrived at the new hospital, too. We had to wait another eternity for the pediatric neurosurgeon to show up. He said the boys would have ventricular taps in the morning. (This is like a spinal tap, only they go through the soft spot on the babies' heads and pull fluid directly out of the ventricles in their brains.) I pray that this relieves the pressure and stops the swelling.
Now I don't know how long the babies will have to stay at the new hospital. I am not sure I can take it if they have to stay there from here on out...
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My milk is officially dried up. I have been pumping ten times a day and taking fenugreek since Tuesday, and I have 7 ml to show for it. Total. All together. Combined. I decided to stop pumping today. I can't describe how emotional it makes me to think about it. And to think I didn't even want to have anything to do with breast milk while I was pregnant.
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I started my period today, too.
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Today just sucked. There is no other way to put it. S.U.C.K.E.D.
****Updated to add that the ventricular tap was a no go today (Sunday). They will be evaluated again tomorrow (Monday) morning. That is great news that they are not as bad as the first doctors thought. Plus, every extra day gives them the chance to start clearing up their bleeds on their own without intervention. That would be the best case scenario.
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7 comments:
I'm so sorry to hear how tough things are going for you right now. You are dealing with so much, DO NOT put pressure on yourself or feel guilty about the breastfeeding. You did your best, and that is all you can do.
I can't imagine how hard it must be to see your boys traveling to another hospital and dealing with what they are going through. But know that it is best that they are in a hospital that is fully equipped to help them get healthy. Praying for you and your family.
You are right. Your day has sucked big time. Hopefully though, this is the worst day you'll have... I'll be keeping you & your family in my thoughts.
Oh wow.
I can only imagine how stressed you must be. Your boys are beautiful. I hope they progress well & soon NICU's will be a distant memory.
Wham bam thank you mam day huh ?
What you are dealing with takes the strength of a super human. I don't know how you are doing it.
It's that bigger picture..someone is telling you that right now...breastfeeding can't be one of your priorities. I hope it frees up a lot of time for you to spend with those boys.
Praying for you and those beautiful boys.
I'm so sorry that everything has spun out of control on you. I have to agree that breastfeeding isn't a top priority right now, so please don't beat yourself up. The period...now that truly sucks.
Deep breath. With any luck they'll be able to let the bleeds resolve on their own and you'll be back in your own NICU in no time.
Sending you hugs and every positive thought I can.
Wow...that is indeed a day that sucked...but I loved your last update; it's great that it's not as bad as was first thought. At least your boys are in the best place to get the care they need. I'm sorry that it's so inconvenient, and that the new NICU is more impersonal. Hopefully the babes won't need to stay for very long.
About pumping...you gave it the best shot anyone could, and your body made the decision for you! Hopefully it will make you less stressed out to know that it happened naturally and was completely out of your control. If there's one good side, at least you know your body is hormonally back to normal!
You and your beautiful sons will be in my thoughts and prayers. I hope that tomorrow brings great news.
Still thinking about you !!
Hope the news is good today !
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