Friday Night Leftovers

I had to put my cat to sleep today. She was my first baby; the "baby" we got right after we got married while I waited for Is.aac to be "ready" to start trying for kids. I doted on her during treatments. After the big boys came home, she would come get me if one even looked like he might start to cry. She slept in their room, under their crib, for an entire year. She would appear out of nowhere any time I felt sad. She was pretty amazing.

I miss her terribly already.

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Thank you for your comments about the last post. I will admit that I am not exactly sure how I would handle that situation when it happens the next time. I didn't mind the comment from the little girl. She seemed to come from a genuinely curious space when she asked it. I didn't care for her word choice of "What's wrong with him?" and I would probably have started with that had I had a chance to respond to her.

Because nothing is wrong with him. His legs work differently, yes. Is it wrong? No.

The hurtful part for me was the mother's response. She made it seem like Ja.son using a walker was some sort of catchy disease. It was more than she was uncomfortable. I don't even want my mind to go to what her response implied.

Sigh.

When I have a clearer idea in my head about how I would want people to respond if this was a perfect world, I'll write about it. Sometimes I feel like I am walking a mine field. I never know exactly what it is I need to look out for until I've stepped on it. Obviously I hadn't thought about this kind of thing until it happened. Now I have to go back and figure out how to handle it in the future. More importantly, I need to figure out strategies to help the boys handle it for themselves in the future.

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We took the boys to the orthotist to get fitted for new AFOs today. They had to have their feet and lower legs casted, which is painless and relatively quick to do, but it was filled with the drama anyway. Ja.son was pretty chill about the whole thing. His concern was what pattern he could pick for them. (Superman, if you can believe that.) Sh.awn was NOT having it. He was tired from therapy earlier that morning, so he just let it all loose--tears, screams, the whole shebang. Fun times.

We should get them in about three weeks.

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We had another snafu with the orthopedist appointment. I called only to be told that the doctor didn't do "anything with spines," which WTF? Actually, I told the receptionist that the boys had CP and she asked what that was. Um, even if he did "do spines" that right there would have scared me away. How can you be an orthopedist and not deal with spines. Grr. We're back to the beginning with this.

I am waiting for a call back from radiology at the Children's Hospital. We have to have CT scans. (Yippee!) Once I have the radiology appointment (should get a call back in 2-3 weeks-yes, weeks), I have to call the neurosurgeon back to try to schedule an appointment with him for the same day.

Once I have the neurosurgery appointment, I can make the neurologist appointment. Maybe I'll have the orthopedist appointment set by then, too. At this rate, it's not looking good that we'll get everything done this summer.

I hate the medical world.

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But, things are still chugging along. We've been slowly checking things off of our Summer Bucket List. The boys and I have got ourselves a routine, so the days are definitely better. Overall, things are going well. Whew!

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Stop by Danifred's for more Leftovers.