He made it through surgery fine. They say there was a blockage in the catheter that leads from the shunt to the ventricle. (I asked if his shunt was one of the recalled shunts, and the asshole had the nerve to tell me that they don't use recalled equipment. No shit idiot. You put this in his head before they were recalled.) They went in to fix just that part. But now...I worry that this won't be the end of it. I have this feeling, and there was something off to his eyes. I would love to be wrong. Pray that I am wrong.
I can't even speak about my run in with the asshole. It was bad. Bad. Bad enough to make me cry for 20 minutes afterward, which made me feel like he won and I am a sack of worthless shit. I hate him. I hate him with every ounce of my being. If I saw him while driving I would run him over, back up, and run him over again hate him. But he is not worth my energy and I need to find a way to not let him beat me mentally.
The fucker.
I think Sh.awn is still dehydrated. He had an IV at our local hospital, which ran for two hours. They disconnected it to transport him to the other hospital. There he sat with no IV for hours. Is.aac kept telling them that he was dehydrated but they never connected him. Finally, he was hooked back up to the IV about 20 minutes before his surgery. The IV blew (making his arm swell to the size of my wrist) on the way from recovery to his hospital room. 5 nurses tried at least 9 places. At one point the nurse went through his vein and back up through his skin. It was horrible, even with the topical anesthetic. They finally decided to ask the docs to approve an IM antibiotic. When they left to go get clearance, we both cried while we tried to soothe Sh.awn back to sleep.
I finally got pedialyte from them when I pointed out he was crying WITHOUT TEARS while they tortured him. He guzzled 6 ounces and kept it down during the scream fest, so I am hopeful about that.
It just his eyes...
They are talking of discharging him tomorrow. The asshole refused a follow-up CT tomorrow before we left because it was unnecessary. They NEVER do that, blah blah blah. Yeah right. They did it twice the last time we were there.
Oh, but get this. He chastised me numerous times because they don't have an up to date CT scan. Um, you won't make sure your work is correct, but you want me to take him to go get CT scans when he doesn't need them. Makes no sense fucker.
Did I mention I hate him?
I told everyone I could that we would not be talking to him tomorrow. I even told him to send the resident during rounds. Want to bet the fucker shows up anyway?
I need to go to bed. It is 3 am and I am exhausted. I slept very little last night because I was so worried about Sh.awn. Today drained me to a new low.
I have to just say that I don't normally curse in real life. I am just so upset...those are the only words that fit my mood.
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15 comments:
I'm so sorry hon.
I'm glad he made it through ok, and will hopefully be home soon.
Around here, 1 brain scan a year is standard, only do more if there are problems. So if you had one from last June, you were up to date. And anyways, fluid is fluid, I assume they tapped it to make sure it was blocked, what difference does it make?
I hope today is a much much better day.
Oh Stacie. I wish I could give you a hug right now.
My thoughts on Dr. Asshole, dont need to like him, he just needs to do his job well in the OR.
I'm so sorry that you have to contend with him when emotions are already so raw.
hugs.
I have been checking on you all day ... you and Shaw.n and Isa.ac have been on my mind constantly.
What a day, you poor things. I hope you can get some sleep. I pray that you go back tomorrow and look into your babies eyes and he is there ..... Max's eyes ALWAYS go funny when he is really sick, I swear Stacie.
Fuckin' love you mate.
That doctor?
I want to rip his ballbag off.
I am so sorry you are dealing with this! That is horrifying. That man sounds like he shouldn't be a doctor at all. Especially since he has no bedside manner at all, and doesn't seem to care about the parents peace of mind whatsoever. I seriously hope you don't have to deal with him again. Sending you all the warm positive thoughts I possibly can right now.
You have every right to curse right now...
I hope you are wrong, that the feeling you have is just that: a feeling. That Shawn will be fine once he's back home. Thinking of you.
What a terrible experience. He needs to be reported. I hope that things are better today.
Oh hon...I am praying hard for you and your little man. I would demand to talk to the department head and demand a CT.
Poor, poor Shawn. I"m so sorry Stacie. I think after you've had your rest you'll be able to figure out a way to beat the fucker. If you had another option....I wish you did. I'm so sorry about the blown IV. There is a tendency for the nurses who work at night to not be the greatest (my mom is an RN and used to work nights, though she is awesome). I can't believe Isaac had to convince them he was dehydrated. I'm sorry you feel such dread over this. I hope with some rest you find the strength to kick some doctor ass.
Oh, Stacie! Just reading all these updates! So sorry. I want to come and beat up that asshole dr for you. Will be keeping all of you in my thoughts.
Oh, curse all you want. The situation warrants it. Big hug!
Dear God! Where were the anesthesiologists? They normally don't let people stick a child 9 times. Surely to God and MDA would have just called off the attempt after twice and said Ok, we're gonna need a central line. We'll get him off to sleep with the mask and do it then. And the arrogant asshole surgeon? Oh honey. Get ugly. Be Mama Bear. Demand to see a partner. And call him on all his inconsistencies. He has no right talking to you like that. You know your child better than anyone, and if something's not right, it's not. Demand an assessment. Even a 2nd opinion. He's got no grounds to be angry or irritated, or arrogant when you're requesting care that was done the last time. And, like I said, you have every right to a 2nd opinion. I'm an OR nurse. I work with these fuckers every day. They make mistakes, too. And when they save themselves from a lawsuit by actually listening to you, they'll be grateful.
Unbelievable. I'm glad you told everyone who would listen about your experience with him.
I would push for the CT scan too. I don't care that it's not procedure. WHO CARES ! DO IT !
You are such an amazing mom. You have the best intuition...which puts you a step above the rest.
Take care of you. and those babies in your belly.
hi there, i am praying for little Shawn to feel much better today and praying for you to continue to have the strength to deal with the inconsiderate doctor.
many of us (even us strangers) send you good thoughts and love - may it fill your heart. you are such an amazing little family.
I'm so sorry..I can't believe you have to deal with this insensitive Doctor..he's one of those Doctor's with a "GOD COMPLEX"..
If you feel something isn't right with YOUR child's Eye's.(for some reason some Doctor's and Nurse,school's etc forget that the child they are dealing with is NOT THEIR CHILD)Have your husband raise the roof off!! I'm worried about your stress level..Demand to speak to the Administrator of the hospital RIGHT NOW!!or the new's media might be interested in a story..
Prayer's for your sweet baby, and also You and your husband!!
Sandy
Sending of as much strength ans support as I can. Keeping your little man in my prayers! Stay strong momma, you are his greatest advocate. You know your son, never let the a-hole tell you any different! Hugs your way and and extra big one for Shawn!
I have not been on in days, I'm so sorry you are having to go through all of this with Shawn. Poor guy. Stick with your gut, and if you think something isn't right push the issue. It is better to do the extra tests even if they aren't necessary, it will help clear everything up.
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