Ahh, what would life be without yet another twist? Jason's picc line stopped working (why is still unclear) so they had to put in another IV. They sedated him so they could start working on a new IV, and Jason starting twitching. They gave him another sedative (ati.van) to see if that would stop the twitching and it didn't. So...
The thought was that this was a seizure. So they gave him an anti-seizure medication. An EEG is scheduled for tomorrow and they ordered a complete blood work-up.
He has no fever, no fussiness, no indications of illness (except the bladder infection that caused no symptoms).
The doctor called me a little while ago to tell me what happened. I asked if the sedative could have been the cause of the twitching.
The answer is yes it could and that is what he thought at first, but usually ati.van stops the twitching if that was the cause. I told him that Jason had already had "ati.van twitching" after his hernia surgery. When he learned that Jason has already had a reaction to ati.van, he said that would explain why it didn't help when he gave it to him. (duh) He said the info I provided made him lean a little more toward this being a reaction to the medication.
They are still proceeding with the further testing to reassure everyone that it isn't actually seizures, but a reaction to the sedation drugs instead.
This may be naive of me, but I don't think that we'll find this was a seizure. Maybe my radar is just overloaded and not working properly. It just doesn't feel like it to me. It is not like I have a medical degree or anything, but I just think this was a reaction to the sedatives.
Hopefully we'll know more tomorrow.
On another note, Shawn may come home tomorrow. Again, I'll believe it when there is a baby in the car, but I suppose it is a possibility.
Update:
After seeing Jason, I don't know what to think. Whatever he is doing (twitching or seizing) continued for awhile after the doctor called me. They gave him the anti seizure meds while I was there, and it did stop whatever he was doing and sedated him. I have several theories that I am pushing on the doctor, of which all are plausible.
- Reaction to the antibiotic. This is the same antibiotic that I had a severe reaction to while I was in the hospital. (the one that made me so sick that they quarantined my room and assigned the infectious diseases doctor to me only to later find that I am allergic to this stuff) A side effect of said drug is muscle twitching. Dr. seems to think that if he was having a reaction to the antibiotic, he would have reacted yesterday, right after his first dose. Of course, I countered that with the fact that it took me two weeks before I reacted to it, and I was getting doses of it every 6 hours. So, this theory remains for me.
- Reaction to sedation medication. Also known side effect is muscle twitching/seizures (according to the med journal the charge nurse looked the med up in tonight)
- Ati.van - the second sedation medication given to stop the twitching that started after first sedation meds. We already know that he had pretty severe twitching after the use of this drug.
- A combo of both sedation medications worked a number on his poor system.
- The picc line in Jason's head was no longer working, so they were replacing it. The first picc line bled, of course. I am told quite a bit. So, they had played with his head, and he lost blood. They tried to reinsert the picc line two more times (back in his head--don't get me started on this one because it just boils me and makes me get ugly) each being unsuccessful and causing further blood loss from his head. They ultimately put a regular IV in his foot, so that was the third IV attempt at the time. In other words, they traumatized him.
- Any/all combination of the above working together.
All of these scenarios piss me off because I truly believe none of this would have happened had I taken him home on Sunday. They redid his blood work, and wouldn't you know that Jason has absolutely zero signs of having any infections. zero. Granted, they did not do a culture on his urine again, but he was in mid range for his cbc readings.
Yes, my friends, I think they erred on the side of caution and then made him sick. I do believe that because literally, this happened within a few minutes. He was fine, and then they wanted to start his antibiotic and do his picc line, and then he was sick. It is not a coincidence that this picc line and the medications are in the center of everything.
I am surprisingly calm about all of this. Angry and on fire, but calm. I made my points with all involved. Thankfully, whatever he was doing had stopped, and I pray it doesn't return, so now we are left with figuring out what happened. He will still have his EEG done in the morning, but I will bet that it shows no seizure activity.
I am working on questions that I'll talk to the Dr about tomorrow. If you have any suggestions, please let me know.
And Shawn just might come home tomorrow. I know I already said that, but I think it needs repeating. He gained weight, and that was the condition fav. doctor gave me on the phone tonight. Even asked specifically about a certain amount of weight, and he said just a gain--said he'd do better at gaining at home anyway (oh really?). So, I still will believe it when I see it, but it could happen.
Updated at 6:29 am 1/25/08 - Jason is back on the ventilator. Don't know what is going on. Still waiting for tests and results to be finished. Has what appears to be another seizure at 5:19 in which he was "close" to coding. Scared shitless. Pray for him.





9 comments:
This comment is related to both of your posts...
I hope and pray that Shawn comes home- One of these boys has to start the homecoming journey minus any setbacks and its about time. And I am so sorry about the IV going back in baby Jason :( You were finally wire free- but...as much as you don't want to hear it, it's necessary to keep his little self stable until they figure out if this was a seizure or not. I hope your mommy instinct is right on and it's not.Fingers crossed as usual for you- I cannot imagine the stress and the heartache you are going through.
I PRAY that you are blessed with hundreds of sleepless nights SOON. Sounds weird but you know what I mean :) You deserve these sleepless night- you deserve to have the catching up time and being a one on one mommy to your babies.
Smile if you can- don't let these babies see you sad :) They love you too much to see Mommy like that!
Oh my GOD Stacie. I just can't believe that it really is literally one thing after another for those precious boys ... and their mama!!! I'm so sorry you're going through this, I really feel like you will get to take one/both home real soon.
I have to say - thank you so much for your comments today! Made me laugh out loud that you were expecting a pic of the offending broken pube. :) Thanks! As for the assvice .... wow, I had never thought of all that. You are a wise sage, do you know that?
Sending love to you xoxoxoxo
We are all with you stacie- please dont worry about venting- you need to... we are here.
I'm sorry - I know it seems like I've been absent here, but I've been reading everything. I guess I've just felt like ranting too, and don't really think that my rant will help you out any.So I've hushed.
I've been praying for both of your babies, and that isn't something that I say lightly. Hopefully this is all just a reaction to the ativan or the antibiotic. That would be very good news.
Please keep us posted. We're here for you Stacie. You know that.
Comment to your update: Yor boys have always been on my prayer list. Thank God Shawn is doing well but I am so sorry to hear about jason being back on the ventilator. Unbelievable. They have come so far and yet been struck by so many obstacles.I pray that this setback with Jason is just that- a little setback- and he bounces back like he usually does and follows his brother home ASAP. I know this is the last thing on your mind, but please update because there's lots of people with fingers crossed for you!
Hoping today turns into a perfect day for you and the boys :)
Praying for you and your boys...
I'm praying for you Stacie.
Hi there girl. What an absolutely unbelievably crappy setback. I'm so, so shocked. My intuition says that your intuition is correct and that this is all connected to the PIC line, the antibiotic and the sedation medications. I'm really keeping my fingers crossed that this is not a seizure, but I'd be very surprised if it was. The timing just strikes me as not being coincidental. If there was a condition underlying the seizures then surely it would have showed up by now, with all that poor Jason's been through?
I hate to voice this, but could they have been wrong about his bladder infection? You'd think there would be some evidence of that in his bloodwork. And I wonder why they didn't do another urine culture.
All I can say is Wow, closely followed by "what the hell?". I sure hope they figure out what they messed up and get him back on track. I can't believe the crazy change in just 2 days.
I'll be thinking of you and hoping all is OK for your little boy Jason.
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