Madeline Alice Spohr was born just three weeks after the boys. She was a 29 weeker, and she fought with all she had and was able to come home to her loving parents long before the boys did. She fought, and she was winning! Thriving! Laughing...loving...enjoying life to its fullest. It was inspiring to watch how she was doing. Last night, the world lost this beautiful, vibrant little girl when she grew wings and flew to heaven.
Heather, Mike, and the rest of Maddie's family and friends will be in my prayers. Life is just so unfair sometimes. So very unfair.
Is.aac and I talked for a long time after we learned of Maddie's death. The news has hit us hard, even though we only knew of Maddie through the Internet community. Memories flooded back. Tears flowed. We were so close to losing our own children at various times, especially Sh.awn, and the pain and fear surrounding those moments are still very fresh in our minds. We tend to fool ourselves into thinking we are safe now that we are so far away from the NICU and the "very dark days." But in reality we are not. Things can still happen. And for families like Maddie's, things still do.
It makes me incredibly sad.
If you can find it in your heart, please go to the family's site, read about this glorious little girl, and donate to the March of Dimes
...to help find a cure for prematurity so another family won't have to face this pain
...for beautiful babies like Maddie.
ETA - AMomTwoBoys set up a page for Maddie that includes service information and has a listing of posts written in honor of this beautiful little girl. There are already nearly 300 posts written. Couple that with the over $20,000 raised so far for the March of Dimes in Maddie's name and the money donated to help assist Heather and Mike, and well...this community is truly amazing.
Posts
10 comments:
The site does not work.
I hear your fear. It's scary especially with all that you have gone through already.
My best friend from college became pregnant shortly after we had Bug. She went into preterm at 24 weeks. Life flighted to John Hopkins.
Caitriana lived six and a half weeks. I went down to see them when she was 27 weeks. The same age Bug would have been if labor wasn't stopped for me.
It was heart breaking how small she was. She was thriving though. to the point that our wonderful Uncle Sam decided that she was well enough to leave John Hopkins (best NICU in the country because they no longer wanted to pay their price) to be transferred to a military hospital, because her Daddy was in the Navy.
She was the healthiest baby there when she arrived, within a week she was gone.
I donate regularly to the march of dimes in Caitriana's memory as well as what could have been with Bug.
Losing our children is one of the scariest things ever. I fear everyday something will happen to Bug.
How very sad. Some dear friends of mine lost their 28 weeker 3 weeks after she was born and it was just horrible. I can only imagine the pain they are going through.
That is very unfair. I will stop by their site and tell them Im thinking of them.
my heart is broken.
I read about this earlier. How very sad.
Was she sick when this happened ? I mean, was she fighting some kind of infection or was this just out of the blue, she was gone, kind of thing ?
I'm sorry this hit so close to home.
Oh wow, how very sad--and sudden! What a gorgeous angel she was. Thank you so much for posting the link; the family will be in our thoughts and prayers.
I'm without words.
I've seen this so many times around the blogs and it breaks my heart every time. The whole family and friends are in my prayers.
When your post showed up in my google reader it was accompanied by three others just like it. I had never had the pleasure of following her blog before this posting. I clicked over to it this morning and read back just a few short posts before. I'm absolutely shocked. Just so, so sad. The family will be in our prayers.
Our prayers are with this family and yours. This is so sad. I have no words..
I am so sick omg i can't deal with this. omg...
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