Sunday, October 30, 2011

Which Do You Think?

I think this year I am going to submit one of my posts to the Creme de la Creme. I can't decide which one to send. Could you give me your thoughts, please?

Oh, and whichever one I send, I will go back and make some edits. I tend to write and hit publish without a whole lot of editing originally, and well, I know that strategy doesn't always for a well written post make. kwim?

I Never Knew
Three Years
Before I Had Kids





Little Heroes

Earlier this year I applied for The Littlest Heroes Project. In a nutshell, it is a non-profit organization which connects photographers to families with children suffering from life altering conditions. The organization understands that photo shoots may not always be the easiest thing to undertake when you're juggling health, therapy, and quite possibly financial issues.

The big boys had no problem meeting the qualifications for the program. Sigh. We were approved in April. I got the information needed to contact the photographer in the beginning of July.

But then I couldn't go any further with it. I just couldn't bring myself to actually send a letter to a photographer.

When I applied for the project, I was unsure if this was something we should pursue. We have some pretty amazing boys who are doing some pretty amazing things. Sure, things can be challenging and there is a lot left to work on when it comes to the boys, but it felt like to do this would be taking advantage of something that others may need more than us.

And then there was my fear of officially labeling the boys. Oh how I hate labeling. Yes, it is clear that there is something going on when you meet them. But I have not officially told many people that there is a CP diagnosis for them. (I work under the you didn't ask, so I didn't tell idea. I was open with the few who directly asked.)

I have also always struggled with how much of their information is mine to tell.

It isn't so much that I care about what people will think, either. A label is just that. It doesn't change anything.

I think my worry is that there are so many misconceptions about CP that people will underestimate their abilities and awesomeness. (I will admit that you'd have to be pretty stupid to not see their awesomeness when you meet them, but there are stupid people out there.) And frankly it's just annoying that I always end up educating everyone about everything. (Hello. I already had to explain IF and incompetent cervix and prematurity. Adding CP to the list right now seem so overwhelming. Besides, I hate that I am already being told that people ask me before going to google about medical shit. I am not their walking medical journal.)

I am very aware of the situations to which I expose the boys--if I don't trust a person's behavior/what he/she will say, he/she doesn't come near the boys. Plain and simple. And well, would this photographer and this site be too much? Would they take advantage somehow?

Sigh. So I sat on the photographer's information while I wrestled with my head. For four months actually.

This week, though, I finally wrote the letter and made contact.

The photographer wrote back the next day saying she'd love to photograph our family. She had checked out their blog and said how awesome they were. (She seems smart so far! lol) She is, of course, booked until January. (She did offer us a date Nov. 7, but the thought of doing the shoot that early freaked the shit out of me so I declined.)

We've booked a date.

 I waffle back and forth between excitement and panic when I think about the idea. That pretty much tells me that this is probably a good idea.

After all, my little heroes deserve to be celebrated, too.

I suppose it's time to start telling some of their story.


Thursday, October 27, 2011

And Then They Were 4...

(cross posted from the boys' blog)



---

You know they've had a good day when you hear things like:

Did you like your cupcakes?

"Yes, but I can't have anymore cake."

But you can have some tomorrow.

"No!" (dramatically turns head away) "I can't because I'm toooooo full."

---

"I gotta go find me some presents." (They only got three small gifts from mommy and daddy today.)

---

‎"Mommy...I had the most wonderfulest birthday."
"Me too!"
And with that, they both rolled over and went to sleep. :-)


---


Shawn figures he should just pinch the flame rather than blow it out...
He did try, though. Lol.

Now Jason blew until he nearly passed out!

The best part of the whole thing. Mmmm...cupcakes!

Num, num, num...

Jack thought he'd take a bite, too!
Mommy was mean and pulled it away at the last minute. :-(

More presents!

Off with the ribbon...

Is it a hat?

Yeah a present!

Present unwrapping is serious business, y'all.

What is it?

Um...I don't know. What is it, mommy?

Oh, wow! It's a game! (Tangrams)

Shawn, you're too slow. Let me help you!

Hey, I got a game, too!

---

They really did have a fantastic day. It was so fun to watch their faces light up when we'd add in another surprise. I think this day will be one they talk about for a long time!

And that makes my heart super happy. :-)

Tuesday, October 25, 2011

IVF Questionnaire

Back in the day when we were first trying to get pregnant, I was part of an IVF forum. There I met some really wonderful women, and I am lucky enough to still call them dear friends.

One of those women, Jody, contacted me asking for help. She has started "a research study on IVF, Informed Consent, and the role of emotions in IVF decision-making. [She is] trying to prove (against researchers' arguments to the contrary) that infertile women are not so desperate to get pregnant that they lack the capacity to consent to IVF. Yes, people are actually saying stupid stuff like that."

Can you imagine?

Take away our ability to consent because we are so desperate to get pregnant we can't make a rational decision about IVF?

It's such a scary thought...one that makes me outraged!

I doubt there is another group as educated and knowledgeable of their bodies and what they are doing to them than the women going through infertility, in particular IVF.

We talk! We research! We make informed decisions based on the information presented to us!

You guys, Jody needs our help.

She has an online survey that she needs to go viral...it's posted on Resolve's site right now. The survey is 30-45 minutes. They are also giving away Amazon gift cards.

Click here for more info. She's also posted about it on the Lost & Found. (Look for the blurb about research with her name)

Take the survey.

Blog about it.

Tweet it.

Help Jody get the word out.

Make sure those of us still in the trenches will continue to have a say in our own treatment.

Thank you!

Friday, October 21, 2011

Friday Night Leftovers - Hodgepodge

  • While the beginning of the week was pretty dismal, the ending was much better. Here's hoping the brighter feelings last.
  • I broke down and bought Jack a few 12 month sleepers. He's growing so fast!
  • My guess is that he should have started wearing that size a few weeks ago (he was getting to the point where he had scooped necks and 3/4 sleeves), but I just didn't want to go there. I am good at the denial game.
  • Plus, there weren't many cute "baby" looking sleepers in that size. The ones that I found looked more big boy than baby, which just made me sad. Boo.
  • He recently got his third tooth. He now has his bottom two front teeth and his top right canine tooth.
  • The big boys got their canine teeth first, too. Odd.
  • 6 days until the big boys' birthday. They are so excited, and it's really cute to watch them anticipate their birthday this year.
  • I think I got them some gifts that they'll really enjoy. I even got them some stage 1 readers! They're definitely ready for them. I mean, they walk around sounding out the first letter of every. word. they. hear.
  • They are usually right. They tend to only get caught up on the letters "c" and "k".
  • I am contemplating taking the day off so we can take them to the zoo, just the four of us.
  • May not be able to get Is.aac off of work, though, so it may have to wait until the weekend.
  • The psycho SIL is pregnant again. Of course it was super easy for them to actually get pregnant after they decided. Grr.
  • It's wrong, but I hope they have a girl. She wants a boy. (I know that isn't very nice of me, but dude...she is a psycho, and if her girl is such a big bully, I'd hate to see what a boy child of theirs would be like.)
  • That means that every single one of the cousins on Is.aac's side of the family will have had a baby in a 14 month period.
  • We had a magazine fundraiser at work. Teachers were able to get a really good deal on the price, so I ordered lots of magazines for us.
  • I have eclectic tastes:
  • I ordered Time (wanted Newsweek, but it was more) so I can find out what is happening. Nick Jr. isn't cutting it when it comes to updating me on the world news.
  • I also ordered Star, because...well, everyone needs to be able to read fluff every now and then. :-)
  • The boys got some children's magazines, too, while Is.aac got a subscription to Men's Health.
  • I'm excited to get them all.
  • Therapy continues to be an issue. Just got a message today (they called the home phone even though they have my cell phone and know I won't be home) that Ja.son's OT is cancelled for the entire week.
  • Makes me want to smack people over all of these stupid issues we're having with them.
  • I'll be good and not.
  • Yet.

Thursday, October 20, 2011

More Tales From the Hood

Today, at this afternoon's outdoor assembly, I looked over at one of my students to see him licking, yes LICKING, the. bottom. of. his. shoe.

I'm not talking about a quick little dab.

I am talking about dragging his tongue repeatedly over the bottom of his shoe. REPEATEDLY.

WTF, people. This kid is in 8th grade!

You would not believe the internal tug of war I had in those few seconds after I saw the first lick.

Do I stop him?

Or instead, do I let natural selection work its course?

Oh, the decisions one must make as a public school teacher.*

As I stood there debating whether I wanted to stop him from ingesting some horrible germ, a girl next to him spotted what he was doing, too. She freaked and made him stop.

Sigh.

This school year has been tough. There is the whole drama of the sh.oo.ting/trial and the aftermath to deal with, but there is something more to it.

My kids this year are just...odd.

There I said it.

My students are nut jobs. (not all of them, of course, but enough to make me seriously wonder what the hell is in our city's water)

No wonder I am so tired.


*I was leaning toward making him stop, but the budding scientist in me was curious. I just have to admit that. Ahem.

Tuesday, October 18, 2011

Brain Purge

Edited to add:

You may have noticed that I haven't published the comments you've left. I hope you don't mind if I keep them to myself right now. You all have been very supportive, and I am very appreciative. Thanks, guys.

---

I am okay. Just thought I needed to say that before I wrote whatever came to mind. I'm just getting it out of my head right now.

---

Sometimes I wonder about myself. Been doing that a lot lately. My head has gone to dark places.

For some reason, I am good at making myself suffer, even better at beating myself up over the little things. Lord knows there are loads of little things.

I pull into myself when I get into these moods. I used to think that it was so I could clarify things in my head. I would take a day or two to regroup and then be ready to move on to the next challenge. Now I wonder if I don't do that as yet another way to punish myself. If I don't allow myself to talk about things, to take care of myself, then reason has it that it would take longer to feel better.

I wonder if my moods have been so dark because I may have slipped into PPD? Maybe it's the PTSD issues again still?

Maybe it is just the timing of things with all of these anniversaries surrounding the boys and their birth?

Sigh.

---

I do know I was very depressed after the boys' birth, the peak (or bottom I suppose depending on your perspective) of those emotions hit in March/April. The boys were about 6 months old.

It was only after I started to feel better that I could look back and really see it.

Where I am at right now doesn't even scratch the surface of where I was at back then. These feelings are nothing compared to that time. Seriously.

But it is interesting to me that Jack is 6 months old...maybe this is just how my head deals with all of these hormonal shifts and changes?

---

The big boys turn 4 in nine days. They are wildly excited, wanting only to have lots of balloons, a rainbow cake, and the people they love around them. It is really very sweet to hear them talk about their party.

I hate that I still can't think about the boys' birth without all of the other...what do I call it? stuff? that seems too trivial. drama doesn't seem right either...events wrapped up along with it in some sort of warped yin yang. It saps joy from their birth for me, something that is totally unfair to all of us.

So I fake it.

I am faking it as I plan for their day. But, it sucks that I have to.

---

Sometimes I wonder where all my courage went.

I miss her--that fearless girl who went after whatever she wanted. She was a fighter, man. I was proud of her. I was proud being her.

There isn't much to be proud of when you'd rather just pull the covers over your head and avoid everything.

 I don't, mind you, but I would love to.

---

If this is the peak/bottom of these feeling (oh, please let it be) then the light is coming soon.

I just need to find it and hold on.

---

The boys finally had their ortho appointments today. It was It is over. We got scripts for their new orthotics and walkers/gait trainers. The shitty part is that there is a possibility of more surgery in the future, although that won't be for at least 6 months to a year from now. You know that will mean we will end up at that point, because you know, it's us we're talking about. Sigh. I think my children are surgery junkies. :-(

Tuesday, October 11, 2011

I'm Just Done. And It's Only October.

That show aired last Friday. After watching it, I was left with the same frustration that I've had for a long time. It pisses me off to no end that the only two people who are talking are two of the biggest nuts from the whole situation. Ugh. (Of course they are getting all the attention...the media loves crazy, and these two have enough crazy for all of us.)

Therapy continues to be a huge stresser. Sh.awn's had 5 sessions canceled (2 we did because they were sick) while Ja.son's had three canceled. Yeah. Sounds fun, right? After my carefully constructed schedule was set (remember it took an entire hour), Sh.awn's therapist injured her shoulder (and got pregnant). No one is there to cover her on one of the days I set. Before explaining that to us, they'd wait until about 5 the day before his appointment to call and say he was canceled for the next day.

So, we are back to trying to squeeze in yet another therapy session on a third day a week to make sure Sh.awn gets all his time.

Jason can't stand his OT. Like, he won't even let her talk to him without losing his shit. This is the ONLY person in the entire building he has reacted to in that way. She'll come tell him she wants to play with him and he'll tell her no he wants to play with someone else. Every time. Then he cries. Every time.

Sigh.

She isn't my favorite person either (she doesn't relate well with kids and has yet to read his eval from what I can tell), but wouldn't you know it that we are stuck with her. If we don't use her, then we'd have to go to a four day a week schedule. That prospect makes my head explode.

All of the NICU emotions are in play here, too. Yesterday is the anniversary of Sh.awn's water breaking. I hoped I'd be over this crap by now. Apparently not.

My relationship with Is.aac is strained. We are doing a lot of bickering; I am just plain tired of always feeling like I do everything wrong. He has this way of nitpicking about everything I do...and well, it just sucks. I can usually blow that kind of crap off, but it is harder to shake now. Plus, even when he is supposed to be helping me, it feels like I still have all of my shit AND his shit to take care of...

I am stressed.

I am overwhelmed.

I am sad.

I am angry.

I am still not in a good place, and I can't quite figure out how to get my head out of this funk.

Wednesday, October 5, 2011

Of Course

And they're going to retry the case. Great. I expected it, but damn if it would have been nice to be wrong. Sigh.

I'd rather focus on happier things right now...like this.

Wordless Wednesday - Here Comes the Sun...


If you're having trouble viewing this video, click here.

Sunday, October 2, 2011

Work

There's a lot going on in my head as usual. I tend to go quiet when that happens. I suppose that partly explains why I've had difficulty writing in this space. I need this space, though. I need to allow myself to get it out without having all of the answers! Easier said than done. :-/

So.

We think the show (on that program with two numbers that add to forty) will air this week. (It's been postponed twice now.) It would make sense, as on Wednesday they will declare whether there will be a retrial. The defense team seems to think there will be another trial. The DA has said as much, but nothing has yet been done formally.

Obviously I am hoping there will be some sort of plea deal.

I suspect that there won't be.

That possibility brings out a whole host of emotions, none of which are good. I feel for everyone...

Sigh.

Apparently, from what we can find, most staffs tend to break apart after a sh.o.ot.ing at a school. We are unique in that we have had only three teachers leave to other schools (none voluntarily - staff reduction at our school) and four teachers leave because of retirement or disability. Everyone else has wanted to stay. Even a student teacher at the time has found her way back to the school.

We do care about each other and our kids.

But we do have issues. Trauma tends to do that to people.

I have mentioned it before, but we have NEVER talked about what happened as a group. Here we are, the people that lived it, and yet we've never been able to give each other the support (and healing) that telling our stories would bring. Do you know what stifling discussion on something big like this does to a group that is mostly women? I'm sure you can imagine. There have been small group discussions, but even those are few and far between.

We were told not to talk.

We were told there would be lawsuits and that our talking about it would open us up to litigation.

Like the good little students we are, we listened. We were all afraid, I suppose. We didn't know what else to do. We were in shock.

Sadly, listening to that nonsense has hurt every one of us. Our morale is low. People are afraid to tell others where they work to avoid the inevitable questions about what happened. (Even I will not wear my school logo out around town.) Our stress level is high. People are getting sick easily and staying sick for what seems like forever. (We have a freakishly high number of teachers on thyroid medication--like over half of the teachers!)

You can only pretend that something isn't (or hasn't) happening for so long...eventually it will catch up to you.

The trial this summer has again brought everything to the forefront. Many of us ended up testifying. Summer was almost nonexistant with that hanging over our heads.

We are already tired, and we are 6 weeks into the school year. That isn't a good sign.

So we created a team, of which I am a member, to problem solve ways to help our staff and school move on. It is hard to move on, though, when you haven't been given the chance to heal.

Our psychologist has offered to bring in a cr.i.s.e.s te.am (sorry I feel like I have to do that) who will finally help to give us the chance to d.e.b.rie.f. This is the same type of team that would d.e.b.rie.f law enforcement or firefighters after they've responded to or experienced tr.ag.edy.

This last week, the psychologist presented our idea to the staff. There were tears when he spoke. We handed out a survey that I created to the staff asking if they would want this type of thing. The overwhelming response was yes.

Within the next few weeks, we will get what we've been missing--that chance to talk.

I imagine it is going to be brutal emotionally. I hope that it will also be good for us all.

We want need to finally get this out.


Saturday, October 1, 2011

6 Months Old

My baby isn't such a baby anymore. He's swiftly moving out of 9 month clothes as the arms are too short on his sleepers. That's probably because he is now 29.5 inches long, and he tops the scales at over 20 pounds. His little legs are thick enough to need both my hands to wrap my fingers around them. He's big.

Yesterday Jack had his 6 month well baby visit. Frankly, it's hard for me to believe he is 6 months old. Why is it that it feels like time with him is moving at warp speed?

I guess because it is.

He's changing so much every single day. New sounds, new milestones...he just ticks them off one by one.

Everything is right on time.

He is perfectly average above average. :-)

I might even go so far as to say that parenting him is just plain EASY. (Seriously, why do people complain about anything if this is the typical experience?) It's a reality that I don't know quite how to process.

Easy hasn't been part of my vocabulary for quite some time.



I could get used to this!

---

The big boys seemed to feel a bit better today. Their noses have finally stopped running. Sh.awn still wants to do an awful lot of snuggling, but I think he is just milking it now. Yay!


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