Showing posts with label prematurity. Show all posts
Showing posts with label prematurity. Show all posts

Thursday, February 4, 2016

Homecoming Day - Part 2

Today is Ja.son's Homecoming Day! On this day 8 years ago, after 100!!! long days in the NICU, we finally got to bring Ja.son home!



Ja.son was actually the one who was going to come home first. On the day of his would-be discharge, he spiked a fever, had a grand mal seizure, and was bagged for 20 minutes while they tried to figure out what was going on in his little body. We had received that call, the one that NICU parents dread, only twenty minutes before, and I remember staring at my boy with a terror and hopelessness I hope to never feel again. He was a very sick little boy, and we were again scared that we might lose him. We definitely could have.

Those moments made this day eight years ago, when we were finally free of the NICU forever, even sweeter. Our family was together in our own home. It was another glorious day!

This day is another special occasion in this house, and like Sh.awn's, I hope it is something we can continue to celebrate forever. :)


Monday, February 9, 2015

#Microblog Monday

"Mom, why are my legs on backwards?" he asked just after dinner.

I stopped what I was doing and looked at him. "What do you mean your legs are backwards?"

"That's what Daniel asked me. He wanted to know why my legs were backwards." He looked down. "It sort of looks like they are. See?"

"Babe, your legs are not backwards. Your legs are just the way they are supposed to be... What did you say to Daniel after he asked you that?"

"I told him I was born very early and my brain got hurt and that now it takes a little more concentration to get my legs to do what I want them to do."

"That's a really good answer, Jay. What did he say when you told him that?"

"He didn't say anything. It was time for recess anyway. We went to go play basketball." He turned away then, picking up his police car as he started making siren sounds. It was clear our conversation was done.

He didn't say anything more about it the rest of the evening, yet I can't get the moment out of my head...

Sigh.

~~~

Stop by Mel's for more #Microblog Monday posts.

Saturday, February 7, 2015

Ja.son's Day!


7 years ago on Thursday, after 100 days in the NICU, we got to bring our Ja.son home. I gave him the choice of celebrating his day on the 4th, his actual Homecoming Day, or today. He chose today so he would get the full benefit of his day. I'm fairly certain he got his money's worth by waiting. :)
 
 
Ja.son took full advantage of his day. He chose a breakfast of pancakes with whipped crème and chocolate chips.


It was raining out today, so like his brother, Ja.son chose to hang out around the house.
 

He picked his favorite movie, the Lego Movie, to watch and controlled the television all day long.
 
 
We played a LOT of Draw Something (and the iPad) today, too.


It was no surprise when he wanted to have pizza for dinner. Our boy is a huge fan of pizza!
 

Then after he blew out his candles and ate his cake, he played cars with his daddy.


 Happy Homecoming Day, Ja.son! Hope you had a great day!

Monday, January 26, 2015

Sh.awn's Day

Yesterday was Sh.awn's Day. 7 years ago yesterday, Shawn came home from the NICU. He was 90 days old.

7 years ago yesterday, after spending so much time in the between--parents yet unable to be care takers--we actually had a child in our home.



I honestly didn't know what to do with myself, especially because I am not exactly sure I truly believed we'd ever get to take them home.

~~~

Yesterday we celebrated Sh.awn and his Homecoming.


He reveled in the chance to call all the shots for the day, eat cake, and open a present.

He loved the idea of a day all for himself, something that is extra nice when you are a twin.

And while it is important for me to give Sh.awn a day to feel special, we celebrate Sh.awn's Homecoming Day because I am so very thankful we have him in our lives.

Happy Homecoming Day, Sh.awn!

Saturday, November 1, 2014

The Boys Are 7!

The big boys turned 7 on Monday. It truly blows my mind. 


Ja.son

Sh.awn


They are so big and smart and funny and amazing--everything I was afraid to wish they'd be when they were tiny premature newborns. I am beyond proud of how far they've come. I know they'll accomplish great things in their future, too!

I am always taken aback by how much the drama behind their birth still affects me. The stab of emotion isn't as strong as it used to be, nor does it last long, but I'd be lying to say that it isn't still there. Even with all of the good that we have in our lives, there is still that small twinge of sadness about what might have been.

Monday, May 5, 2014

Parents of Preemies Day

Yesterday, May 4, was Parents of Preemies Day.

Few things in my life have shaken my core like having my boys prematurely. While giving birth in itself is a life changing event, watching your desperately wanted babies struggle to breath and come to the brink of death more times than you'd care to count has a way of altering your very being in an overwhelmingly profound way.

Maybe we did have a more traumatic NICU stay than many. Maybe we faced a few more long term complications than most. But, I'd venture to guess that even the "easiest"* NICU stays have the potential to teach a person to never, ever take children for granted. The way a person sees the world will quite possibly never be the same.

The experience and its aftermath has haunted me for many years. Slowly but surely I've come to no longer say I failed my boys. Maybe I've even gotten to the point of mostly forgiving my body (and myself) for their early arrival. It's been, and continues to be, a painful process, but I think I'm getting there.

I know I'm getting there.

This year has been momentous for us, as I suspected it would be. After many, many years of keeping ourselves wrapped in a predictable, safe little cocoon, we let our fragile little preemies fabulous boys out into the big, big world of kindergarten. There were a few adjustments to make, but adjust they did.

They are succeeding.

They are thriving!

With each achievement they make on their own, I feel more and more confident in their future. I feel my need to shelter them lessen some. These boys are going to do amazing things and nothing is going to stop them.

It's been a different story for Is.aac, though. While I have felt my urge to protect them from the world ease, he has experienced the opposite reaction.

He's wrestled with new demons of fear, which leave him wanting to real in the boys' freedom. He's become the parent walking behind the boys with his hands out, waiting to protect them from the next hazard.

It could be, in part at least, due to the fact that he's now more of a caretaker for the boys since he's been laid off.

I think it's also because he's never had the chance to really deal with all of the emotions from the boys' early days. Now that there is no other direction for his attention at work...well, he feels the responsibility of keeping them safe in a much keener way.

We've been doing a lot of talking lately. About those days. About the feelings behind that time.

I've had a hard time working through how I've been affected, and I've had outlets to direct my emotions.

He's not had anything.

How powerless he must have felt during those days. The doctors and nurses told him much bleaker updates than they ever told me. (Which? I'm choosing not to really think about this.) His wife was an emotional/hormonal mess/guilt ridden mess. He was expected to be my rock, and yet he had no rock of his own on which to rely.

I feel for the him and what he endured during that time. I feel for him now.

So yesterday, on this year's Parents of Preemies Day, I spent the day celebrating my husband and his resilience, courage, strength, and commitment to his family. I thanked him for his support while I healed. It's now my turn to support him on his journey toward healing, too.

*I don't care how long you stay, or what the circumstances behind the it, no NICU experience is easy.

Thursday, April 10, 2014

Mostly Wordless Wednesday


Notice anything on that beautiful face?

Come on. Look again.

That's right, you don't! Ja.son isn't wearing his glasses!!

After 5 and a half years, Ja.son's vision is now within normal limits. For now, he no longer needs to wear his glasses!!!

We have a recheck in six months to see how things stand with his vision. Until then, we were told that he gets to be glasses free* unless we noticed his eyes turning. Woo to the double whooo!

Sh.awn's vision has also dramatically improved. Technically his vision is fairly close to normal as well, but his right eye did turn in (then quickly self corrected) when his glasses were off. He's going to keep his glasses for the time being to hopefully allow his eyes to continue to strengthen.

So take that prematurity. We hereby declare vision victory over your miserable behind!

*Poor Ja.son has worn his glasses since his first birthday. He knows nothing else. It has been an interesting day for him to say the least. It took him several hours before he was ready to give me his glasses. It's hard to just drop something that has been such a part of your life for so long. Then, once they were off, he cried a bit as he worried that everyone would laugh at him without his glasses. (How's that for a twist to the usual story?) This being glasses-less thing is going to take some getting used to for all of us, most especially him.

It's odd that this one little change can make him seem so different to me.


Saturday, January 18, 2014

Maybe

Their due date was this week. It quietly eased passed without anyone really even noticing.

Maybe this year I spent less time thinking about the what ifs.

Maybe I didn't have that familiar sour stomach that usually comes around this time of year.

Maybe it was just a regular day.

The same as every other day.

Only not.

I made cupcakes that day.

Told the boys I made them for no particular reason. They insisted there was a reason...cupcakes need a reason to be had, I guess, especially when made during the work week. In the end, I told them they were just so we celebrate us as a family.

I didn't have another reason. I don't really know why I made them.

Maybe I wanted some chocolate, my go to comfort food.

Maybe I just needed to.

Maybe there was a part of me that wished we were celebrating a birthday that day.

That we had no idea what words like prematurity and cerebral palsy would mean to our family.

 Maybe I just needed to pretend for a second that things had gone just as we planned.

Maybe I'm not as okay about this day as I'd like to say I am.

Monday, November 18, 2013

All the Time

Someone on a message board I frequent asked the other day if we ever wondered how our kids would be had they not been born prematurely. Three words immediately ran through my mind.

All. The. Time.

Lately, I've been thinking about it all the time. How can I not when we deal with the lasting effects of their prematurity every single day?

~~~

Maybe this issue is so prominent on my mind right now because I feel the enormous weight of trying to be the best advocate I can for the boys. I owe it to them, not just because I am their mom and I love them with all my being, but because it is the least I can do for them.

I haven't signed the boys' IEPs yet. They are here, sitting on our kitchen table. All they need is the stroke of a pen, but I can't bring myself to actually write my name on the indicated line.

I am generally okay with the services they are offering for the boys. Right now it's a fine line between providing adequate services while not detracting from their educational school day.
 
I am, however, still uncomfortable with one of the report summaries and the testing results for Sh.awn. I strongly feel that the results are wildly inaccurate, and I am very uncomfortable allowing that report to become a part of his permanent record. I also feel that there was a gross misunderstanding of Sh.awn's hydrocephalus diagnosis reflected in her summary. I know full well that our decisions will lay their educational foundation for many years to come.
 
So I called the person out on it. I wrote her a letter detailing our (mostly my but Is.aac is definitely supporting my thoughts) concerns. 
 
There has not yet been a reply.
 
My gut is telling me that we need to be very cautious about what information we allow into Sh.awn and Ja.son's educational records. 
 
So I guess it's no surprise I can't shake the thought of just how different things would be for them if they hadn't been born 12 weeks too early.

~~~

How would things be different for my boys? How would we be different as a family? How would I be different? I know there isn't really any answer to those questions. I also know my mind has romanticized how wonderfully "normal" life would be for us had things gone perfectly.

On the message board, person after person commented that they often think about how life would be different had their families not been affected by prematurity. It was comforting for me to read.

Sunday, November 17, 2013

Proud

I have more to say on this topic, but I am trying to finish my grades (I hate grading!) and time is limited tonight. I did still want to commemorate the day, though. I decided it was better to cross post than to wait until tomorrow.

It's no secret that I feel strongly about prematurity and its lasting effects for my family. For as much as their early birth has altered the reality we envisioned we'd live as parents, I am so unbelievably proud of my boys...of us for surviving.

For thriving.

I guess the one good thing prematurity has brought to us is tangible proof of just how strong and determined my crew can be.

Boy are we determined. ;)

~~~

November 17 is World Prematurity Day.



It's a day to think about the global issue of prematurity and the one in eight children born too soon.



For me, it's a day to marvel at my two preemie miracles.

Ja.son (left) and Sh.awn (right)


A time to think of how far they've come since their very early arrival.

Ja.son (twin B)

Sh.awn (twin A)


A time to imagine just how much further they will go.

Showing some love on their birthday.



Look out world. These boys are going to take you by storm. I know that much!

If you're interested, here's last year's post for World Prematurity Day that was posted on the boys' blog. I have to say it has some really sweet pictures of our two little heroes. :)

Sunday, October 20, 2013

October

Dare I say that things are settling?

In a good way even.

Both the boys are finally doing well in school. My own classes have found their rhythm and are plugging along in a way that makes me feel good. If it weren't for yet another round of the SICK--seriously this is like the 9th cold they've had since school started, and I'd even say that this might be the worst one yet--I'd say that things are going smoothly at home, too.

I should have been starting to relax now that things have found their grooves. For some reason, though, I was in an even higher state of alert than I was at the end of summer.

I didn't want to write. I didn't want to do anything. I just wanted to be by myself, and it is taking a LOT of self talk to get out and do what needs to be done. While I am an introvert by nature, I never really had trouble doing things when something came up, so this was different. The way I've been feeling has been really off; I just couldn't understand what my problem was.

Then yesterday, it hit me.

This is the month. I can't believe I didn't realize it sooner.

~~~

Six years ago yesterday, I was admitted to the hospital where I'd spend the next 8 days desperately clinging to the hope I would remain pregnant for a long time to come.

Never once did I think about the calendar or the dates this year. The countdown to the boys' birth, which was always upfront in my mind in past years, never even occurred to me.

Interestingly, although my mind tried to "forget" that time, my body knew. I had a very visceral physical reaction, one that makes me wonder if I'll be okay this time of year ever again.

Will I ever really be able to avoid the punch to the gut this time of year brings? 

Sigh.

~~~

While a lot of that time has slipped into the recesses of my mind (thankfully), there are some things that are still fresh in my memory. I can't tell you any more who the nurses were, but I can tell you what the soap smells like and that it burned my raw and cracked hands every time I used it. I can't tell you about much of the other things I did daily for those 100 days, but I know the exact number of tile squares there are from the hospital door to the first elevator (238). I look at some pictures from that time and don't remember taking them, have no clue the context around what is shown, but it's been six years and I still have occasional moments when I'm haunted by flashes of fear and confusion that time held.

~~~

A week from today the boys will be six. They've been counting down for months; their excitement is almost uncontainable at this point. We have a quiet family celebration planned on Saturday. We're going to the zoo on their actual day. It will be a good weekend, I'm sure.

They're good.

I'm even good...mostly.


There's so much good on which to focus. Really there is. That's what I intend to start doing.

Sunday, March 10, 2013

Parents of Preemies Day

Today is Parents of Preemies Day.

Times two!

Nothing has rocked our world as much as prematurity has. I don't say those words lightly either, because we have had a lot of shaking in our lives--Infertility, RPL, Difficult pregnancy, Multiples, Loss, and now Cerebral Palsy.

It is prematurity, though, that has single-handedly altered the journey we thought we'd take and put our family on the path it's on today.

To be honest, I'm not comfortable with the focus of that time being on me or us. My husband and I did what we had to do...what I believe most people would do in the face of a crisis. But while the boys (with the help of doctors and nurses) did the hard work of kicking NICU butt, I need to remind myself there is something to be said about our role in making them into the happy, healthy boys they are today.

So today I'm taking just a few moments to reflect on our experience during the 100 days our boys spent in the NICU.

I am recognizing the courage and commitment it took to for us to stay strong and resilient when our world was turned upside down by the boys' arrival into our family twelve weeks early.

We did it.

While I am fiercely proud of my boys, I am damn proud of us, too.

I am proud of all of the parents who fight for their kids when they are in the hospital and continue to fight for their kids for the rest of their lives.

So to everyone out there who has had a child or family member in the NICU, today is your day to be acknowledged. Happy Parents of Preemies Day!

Saturday, January 26, 2013

Weekend Leftovers


Today we celebrated Sh.awn's Homecoming Day. We made the day all about him and his choices. He LOVED it. Ja.son, however, wasn't nearly as enthused. His feelings could be summed up by this one picture:



He struggled with why they both didn't have a Homecoming Day today, even though he knows that he gets to have his day only nine sleeps from now. He told me repeatedly throughout the day that he wanted exactly what Sh.awn got, which brought up several pretty interesting discussions.

This is exactly why I love the idea of Homecoming Day. Yes, we celebrate because the day is the anniversary of when each came home from the hospital, but it is also a day to focus on each boy individually. That kind of thing is hard to come by when you have twins.

~~~

Thank you to Mel for highlighting two of my posts on the Friday Roundup! I'm so humbled and appreciative!

~~~

My cat is not well. We've had her for ten years, and she was somewhere around four-ish when we got her...

I am really worried about what this will mean. I have to call Monday morning to get her in to the vet.

~~~

My grandmother went back to her pulmonologist on Friday and was given the all clear. Finally. She has a little bit of scarring, but other than that she is healthy.

Her doctor was pretty surprised to see how good she look and even told her so. He gave grandma the impression that he didn't think she'd be alive for much longer when he saw her last August.

She's one tough cookie, my grandma.

~~~

It's tax time. Whoot! I love doing our taxes!

That's not strange or anything, is it? :)

~~~


Stop by Danifred's for more Leftovers.

Friday, January 25, 2013

Happy Homecoming Day, Sh.awn!

On this day five years ago, our little Sh.awn came home from the hospital! We were so excited to get the chance to finally be parents without the watchful eyes of the hospital personnel.

Picking him up without having to juggle wires was pure bliss. Sigh. I'm pretty sure all I did that first night was feed him at the expected three hour intervals and stare in wonder at him the rest of the night.

Happy Homecoming Day, Sh.awn!


It blows my mind to look at how tiny he was -- and he was
four times his birth weigh here!

Tomorrow, we get to celebrate! :-)

For those of you wanting to take a trip down memory lane, I wrote about his Homecoming here. (Try not to focus on the look of panic and disbelief we have on our faces in every single picture. I'm certain we both thought they were going to change their minds at any second and tell us he had to stay. lol)

Thursday, January 17, 2013

Just Another Day, But Not

Yesterday was their due date. It's a day that should really hold little meaning five  years after the fact with the focus now on the day they were born.

And it is, of course.

But to me, their due date is significant. It's not a day we celebrate--the boys don't even know about its existence.

Their due date is when I allow myself to unwrap the tiny box filled with what if's held tight against my heart. Really, it's impossible to think of one without the other.

I think of how different things would be had I not had them so early.

I wonder.

I fantasize.

I dream.

I grieve, although this year I didn't cry. Maybe by now, I've cried my tears dry.

Then I neatly fold the thoughts back into their case for safekeeping.

~~~

I sometimes wonder if I'll ever be able to let go of the effects of that time. I wonder if I really want to let it go. As much as I hate what prematurity has meant for our family, it is part of what made us who we are.

Without all that they endured, they wouldn't be them. We wouldn't be us.

I wouldn't be me.

~~~

I didn't say anything yesterday. I didn't want to point it out in case he didn't remember.

I remembered and thought that was enough.

He brought it up while we were in bed last night. He talked about his love for them, his love for me.

It's comforting to know that he still thinks of that time. Makes me feel less broken to hear he struggles with it too from time to time.

Saturday, December 29, 2012

Okay

On Christmas Eve, I made my first return visit to the NICU since the boys were discharged five years ago.

It's funny that it was so difficult for me to imagine going, especially because I have been back to that hospital several times since then. I even had Jack there for goodness sake. In all of that time, though, I avoided that part of the hospital like the plague.

The anticipation of the visit made my stomach a wreck on the days leading up to the 24th. I wanted to back out so many times, it was ridiculous. But I didn't. I told myself that my desire to avoid that place was the most important reason for me to face my demon head on. It didn't hurt that I had my friend from the preemie board meeting me there to help with my confidence.

The night before, my friend, K, let me know that she had called to tell them to expect us. (As an aside, I still have the NICU number saved in my phone's contact list. It has this way of jolting me when I least expect it, and yet I can't bring myself to delete it.) K told me the names of the nurses who would be there. The names were vaguely familiar, but for the life of me, I couldn't say for sure if they were our nurses. The very people who helped make my boys well enough to come home, people I spent over a hundred days with, seemed to be erased from my memory. (There are a lot of holes in what I remember from that time. Some moments are etched in my brain for eternity, but many of the day to day reality is long gone. It's a strange sensation.)

I felt the same familiar feeling when I got to that turn in the road, the one about five minutes away from the hospital, my last opportunity to turn around before the hospital. I had to wrestle with myself every single time I went there back in those days. Every day I fought the overwhelming urge to turn around and go home. It was at that point that my courage faltered, the facade cracked ever so slightly. Every day I managed to grit my teeth and keep driving.

I wasn't prepared for that particular panic to flood my body last week, but there it was anyway. I guess I should have expected it; I was going back to the place that holds so many terrifying memories, after all. This time, like the others, I kept driving.

I managed to park in the same parking lot, pass through the same halls. I thought about the woman at the front desk who would wave us in after hours and tell us she was praying for our babies. I thought about that creaky elevator that emptied right outside of the NICU...I passed it by. I focused on my feet and willed them to keep walking.

In the end, my anxiety was for naught. When K and I got up to the NICU, it was really too busy for us to actually talk to any of the nurses. (I hate to admit it, but I was so relieved. I'm not sure if I would have handled that well.) One side of the NICU, the level 1 nursery--the place we spent so much time, was closed. The secretary took us over there to drop off our gifts. K had candy for the nurses, some clothing for the babies, and books for both the parents and the babies. I managed to find some gently used picture books to donate.

I also took our Christmas card, thinking that maybe they'd remember us from the picture. In some ways, we still resemble the two shell shocked parents the knew five years ago. In more ways, we are nothing like the people they came to know back then. But, maybe they've wondered about our two little men...us, I don't know. Maybe our card would show them that we are okay. We're happy. We're thriving.

As I awkwardly stood there listening to K and the secretary chat, I looked around at this place that was our home away from home for over 100 days. There was our corner of the room near the window. I looked at the two empty isolettes in our old spots. Memories tugged at the recessives of my mind. I flashed to Jason lying there under his blue billi lights. Heard the swoosh of his vent. I pictured Is.aac changing Sh.awn's preemie diaper. The room was so, so little. No one was in it, and it was still tiny. How had I never noticed that?

It didn't feel that way while we were there, that's for sure. Instead it felt massive. The space mirrored my emotions at that time--it as vast as the pain and guilt in my heart.

I like that the NICU seemed small now.

I went back through my archives when I got home. I read through those months, remembered things I had forgotten. I shook my head at my naivete. I cried over the hurt and fear and anger that oozed from my words. I told the me of five years ago to hold on, it will be okay. She will be okay.

Because it is okay.

More than okay.

Saturday, November 17, 2012

World Prematurity Day - Part 2

Today was World Prematurity Day. We wore our purple, but I have to say that the weight of how prematurity has affected our lives was heavy on my heart. Each time I looked at my boys with their bright purple shirts, I was reminded.
 
Over and over again all day long it was there.
 
Every single one of their struggles is directly related to their prematurity. All of the scary diagnoses, the complications, the surgeries, and the challenges are from being born too soon.
 
Oh how I wish I could somehow change this one thing in their lives on days like this, somehow give them another week or two to gestate. The "if onlys" are many, and the guilt comes back. How could it not when my body's failure played such a major role in the most influential event of their lives? While the guilt may not be as intense as it used to be, it's still there. I imagine it might always be.
 
But, I know, know in my heart that we are very lucky.
 
I know how very close we came to losing our boys.
 
I am so, so thankful that they are still here.
 
I know just how strong and determine these boys are, and I am so very proud of them.
 

Friday, November 16, 2012

World Prematurity Day

November 17 is World Prematurity Day, a day when we focus on the global (and our very personal) problem of premature birth.

Shawn on the day he was born.
10/27/07

A day when millions of people around the world join together to Honor babies born too soon.

Jason on the day he was born.
He was so, so sick here. :-(
A day we celebrate the tremendous strength and determination our our little fighters.

Isaac's ring on Jason's foot.
It could have easily gone up his entire leg.

Being premature means more than babies are just born small. 


Isaac's ring on a tiny hand.

For more than a million babies each year, prematurity means they won't make it to their first birthday.

Mommy giving Shawn a kiss.
11/4/07
While other parents get to take their newborns home to snuggle and enjoy,


Mommy kissing Jason.
11/4/07
parents of preemies spend days...weeks...or like in our case, months sitting at their babies' bedside

Daddy meeting his boy for the first time.
Shawn

wishing, praying, hoping, and pleading that their babies get well enough to come home.

Daddy meeting his second boy.
Jason
On November 17, we'll be wearing purple to remember the battle we faced because of prematurity.

Daddy holding Shawn for the first time.
We'll be wearing purple in honor of all very special preemies in our lives.

Mommy holding Jason for the first time.

Please join us in wearing purple to show your awareness of the millions of premature babies world wide and to honor the preemie babies in your life.

~~~

The post I wrote for last year's World Prematurity Day.
The post I wrote for 2010's World Prematurity Day.

Wednesday, October 10, 2012

17 Days...

On this day, five years ago, Baby A's (Sh.awn's) sack ruptured. I was exactly 26 weeks pregnant.

The countdown to the boys' birth is on...

I'd be lying if I said that wasn't one of the scariest times in my life - a time filled with fear and stress. And while the date doesn't have the same emotional hold on me, I guess it says something that the day itself still stands out on the calendar. I know it's coming, and I most certainly know it's here.

Now, rather than focus on the feelings from then, I focus on the joy those two little men sleeping in the next room bring to our lives.

I marvel in how much they've accomplished in their lives, things that some might have said would never happen.

I revel in pride.

Today I focus on my amazing boys. We may not know what the future holds, but we do know we're going to face it with strength and determination!

In 17 days, my big boys are going to be 5.

Wow.

~~~

Last night, on Parenthood, there was a scene where the entire family was at the baseball field watching one of the boys play ball. The boy sat most of the game in the dugout until the grandfather went to the coach and demanded the boy get to play. The coach relented, allowing the boy to finally be called up to the plate. On the boy's third pitch, he hit the ball and ultimately scored a home run while the entire family cheered him on.

Oh how I cried.

We did baseball when I was a kid. (I was even on a Little League team for first and second grade. That's how into baseball my family was.) My older brothers played until they aged out of the league, my dad was an umpire for the league, and my mom managed the concession stand, so we spent many hours at the field as a family.

I guess that was how I pictured my life would be when I had kids. We'd live at the field during baseball season like my family did when I was little. I'd sit in the stands and cheer my boys on as they raced around the bases. We'd head to the local pizza joint to celebrate with the team after a hard fought win.

Last night, it struck me that we'd not have those kind of family memories.

My heart ached with a crushing intensity, and I cried like a little baby over a silly little dream.

Sigh.

I think I have it all under control (maybe I mostly do?), but there are days when the scab over the loss of what I expected our lives to be is ripped off. It takes a bit of bleeding before I can build the scab up again, I suppose.

~~~

I was still feeling pretty raw when I went to pick up the boys for therapy. There's nothing quite like the assault of reality on already fragile emotions, right?

Imagine my surprise when I discovered the therapists had created a mini baseball game for the boys to play today.

It was all I could do to hold myself together as I watched them hit a ball off a tee and run around the bases.

I still get emotional thinking about it now.

Unknowingly, the boys' therapists gave me the salve for my bleeding heart.

I so needed a reminder that while things may not be the way I pictured them, they are still pretty damn amazing.

I really do have so MUCH to be thankful for in my life.

Tuesday, April 10, 2012

March for Babies

40 days from now, I will participate in my first March of Dimes March for Babies. I have to say that the prospect of participating makes me nervous. I've done pretty well with the whole bury your emotions and move on so you can function thing, and this...well, it just makes me worried that some of that crud will come rushing back. In public. And make me cry. In public. I do not like to cry, ESPECIALLY in public.

But it is time for me to focus on this worthy cause. I am quite certain that without the work of the March of Dimes, it is very possible likely that Shawn and Jason would not be here with us today.

Just thinking that thought makes me tear up. It reminds me just how many times we actually did think we'd lose them.

I am endlessly thankful to the March of Dimes. I want to give something back to the very organization that gave me SO much.
So many of you were here when we struggled through those very dark days. You have watched my boys beat some pretty serious odds and continue to fight on like the rock stars they are...

So I am asking for your help.

Our team goal is to raise $1000 to support the March of Dimes' research and programs that help moms have full-term pregnancies and give babies the chance to begin healthy lives. It will also be used to bring comfort and information to families with a baby in newborn intensive care (NICU), something that is very important to me.

Please consider donating to this very worthy cause. Anything will help. If you're not sure how much to donate, how about:
  • $90.00? - to represent the length of Shawn's NICU stay
  • Or $100.00 - to represent the length of Jason's NICU stay
  • Or $12.00 - to represent the number of weeks early they were born
  • $232.00 - to represent the number of weeks they've been a part of our lives!
  • Anything you can contribute is welcome :-)

For more about why the March of Dimes March for Babies fundraiser is important to me, please read this post.

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